Boho Touchstones: Where a family in need is nominated and honored by having a custom order created as a wearable heirloom for their little to enjoy for always.
This is Paisley, a courageous 8 year old who’s story not only touched my heart, but the lives of all who surround her. She was nominated by a family friend, and I thank this family dearly for sharing their story and allowing me to be a part of it!
I would like to nominate Paisley Kavanaugh for your Touchstone Gift Honoree. She and her parents have had unthinkable tribulations surrounding Paisley’s health over the last 2 years.
After repeated incidents of young Paisley having days of headaches, nausea and vomiting, in 4 months, there was still no diagnosis or relief from doctors or natural remedies. They continued to seek the cause of this relentless pain until one day she collapsed and had to be rushed to the emergency room where an alarming seizure had left her eerily unresponsive.
There a CT scan discovered a large mass in her brain which was soon after removed by a neurosurgeon, leaving this 8 year old girl with a scar going almost from ear to ear on the top of her head like a headband. The tumor is a rare one, called Craniopharyngioma, which affects the pituitary gland. She spent 2 weeks in the hospital and her recovery was long and hard for her, her mom and dad. They have been doing MRI’s every 3 months for the past year to make sure that the tumor was completely removed.
Sadly, her most recent MRI, just a few weeks from Paisley’s 10th birthday, revealed a new tumor had grown in place of the old. It is unknown yet, what will be done to prevent this tumor’s growth, it may mean chemo and/or radiation this time around.
Paisley is a sweet, caring young lady with an impressive smile and selfless attitude. She even wrote a book sharing her perspective of what happened to her. The idea being that she could give this to other kids at the Children’s Hospital so that they might not be so scared. Did I mention she was only 8 years old when this happened? She’s years ahead of me!
Please consider Paisley for her courage and resiliency. I think her and her parents would love one of your beautiful designs made just for her. It would be something bright and even comforting for Paisley to wear, especially if you can combine contributions from her parents. She could wear it like a badge of honor, a reminder of her family’s strength and love for each other and most of all Paisley.”
Very truly yours, Amy Weaver
and the three tops were then up cycled into a fun and colorful Boho Dress just like Paisleys personality!
It means so much to me, that this little girl can feel pretty and be comforted by being clothed in textiles of her parents. A wearable heirloom, a fabricated memory in time.
Do you have someone you know, or possibly it is yourself, who has faced some overwhelming challenges and would cherish having a fabrication sentimental to them repurposed into a wearable heirloom for their little?
Simply send in an email titled “Boho Touchstones Honoring” of why you believe this family would be a good match for our Boho Touchstones program, along with a photo of them, and we will gift a new family every other month. This family will send in an item they would like repurposed and I will custom create a one of a kind wearable heirloom for the little in their life.
sincerely ~ Kristen Saylor